Monday Musings: December 27. 2010
Monday, December 27, 2010 at 19:15 We’re almost through another ‘holiday season, and all I really know is that the year may end, but laundry and housework go on forever. So, too the toxic parenting styles. Dealing with my 93-year-old mother this last week has been, uh … challenging. She decided not to participate on Christmas because we ‘stole’ her car out of the garage up at the retirement home. Rather than calling and telling me this, she simply decided to not answer the phone. When I got the manager to check on her, she told him that the phone could ring until hell froze over.
Ma, I’ve got a New York Strip roast in the oven and guests arriving. Take your drama elsewhere.
Actually, we’d been telling her for weeks that the car needed to be smogged and registered before the end of the year. Since she’s not driven it since her ‘accident’ a couple months ago, we took an opportunity to go get it. Shame on us. I’ve tried reasoning with her, that driving is not in the picture anymore. She couldn’t possibly get her walker in and out of the car on the best of the best of days by herself. This is where sheer fantasy meets up with that river called ‘denial’.
So, despite threats of calling RPD to report that I’ve stolen her car, I’m going to register it and then promptly sell it. That money will more than pay a months rent at the retirement home, and the savings on car insurance - which has gone stratospheric since the accident - will be substantial as well.
Whatever your familial holiday dramas, know that we all have them. It’s just something that you survive. Like laundry and housework.
Ooooh, the backyard bird feeding has produced something new! Nut Hatches, which I’ve seen often up in the Sierras, have never graced my acreage until now. A Red-breasted Nut Hatch was out working the suet feeder day before yesterday.
For about the last two months, I’ve been talking to a local breast cancer patient who reached out to me. That in itself was a damn gutsy thing to do. You’d be surprised how many can’t. The sad thing was that she was Stage IV … really serious. After long conversations on the phone, over lunch and by email, it’s become apparent that the cancer community in Reno failed her miserably.
With an oncologist who is a well-known heartless ‘prick’ with a smarmy, less than professional bedside manner and the complete lack of a coordinated effort within the cancer community, it seems that it’s all just been too little too late. I encouraged her to go to another oncology group - which she has, reporting it to be much better - and we even made plans to go to the University of Texas, MD Anderson Cancer Center for a second opinion. The appointment was made, she got donated miles on the airline, and I made reservations at the hotel I stay at as well as a non-revenue reservation for myself on Delta.
She can’t make it. It’s all too much at this point. She fell and really hurt herself, and that could point to a condition far more serious than even MD Anderson can reasonably be expected to offer a ‘good’ or hopeful outcome for.
As I’ve watched the local hospitals unfurl banners and big marketing programs touting better breast cancer programs, at the end of the day, it’s simply not working well beyond the confines of a particular ‘campus’. No woman should have to engage in a struggle of this magnitude, not to mention alone. I’m fairly certain that I would not have survived my own Stage III breast cancer were it not for the support of my husband and our financial ability to go wherever for the best treatment. I can’t imagine how horrible it would have been were I divorced.
Here’s the problem: Unless a woman can know to pro-actively go to an accredited ‘breast center’ - such as it is in Reno, Nevada - before she’s routinely sent to the surgeon, it’s all just a thought exercise. Women are still going from their OB-GYN or primary physician to the imaging center (which might be an independent, stand alone enterprise), and with a ‘bad’ mammogram, she’s sent to a surgeon here. What do surgeons do? They cut. Call it biopsy - excisional or otherwise - it’s the same.
These women are frightened beyond belief and they want it gone now. Sometimes that is exactly the very worst thing they can do.
Recently, another acquaintance told me that his wife was getting her double mastectomy in a week. Huh? What? Oh, yes … she’d gotten a second opinion. At the hospital in Truckee. Yup. A well-known center of breast cancer excellence. There were so many things ‘wrong’ with what I later heard about the decision making process in this case, that I finally had to just stop listening/stop thinking about it or ‘lose it’ entirely.
I’ve distanced myself from the breast cancer fight here in Reno pretty much because I can’t stand hearing stories like this and not be able to really help. I’m just emotionally exhausted by it. I’ve lost too many women I cared for. This has to be a war waged pro-actively - BEFORE women get the scary mammogram. Women themselves have to be informed about what the right steps are - upon diagnosis - so their fear doesn’t get the better of them and set them on a course that allows no ‘do-overs’. It isn’t just about finding the lump. Making sub-optimal medical decisions after the lump is ‘found’ can be just as tragic as never finding the lump in time!
The medical community has to take some sort of responsibility for its own conduct, too.
Sub-prime doctors are still tolerated and given a pass. As are those who ‘don’t play well with others’, which is a death dealing downside of our vaunted ‘free market’ free-wheeling capitalism when it comes to health and well-being.
I know women are afraid to read article after article about breast cancer, and what to do if they ever get that diagnosis. I know I didn’t want to read that stuff, and didn’t. It would’ve killed me had not educated, informed friends intervened, and we had the means to take bold action. But the alternative can kill them.
I’m always telling cancer patients that they only have one first chance to get it right in so far as their treatment. They didn’t get cancer overnight, and it won’t matter if they take a week or even a month to really understand their disease, get a second or even third opinion ( really out of the area if possible!), and devise a comprehensive treatment plan they can truly understand and believe in - and live with.
I wish I knew how to get that message across better, but I don’t.
-maven
birds,
breast cancer,
mom,
red breasted nuthatch in
Monday musings,
breast cancer,
cancer,
purely maven 











